I am in the midst of a long and frustrating battle to understand what's going on inside my body. I've been diagnosed with eosinophilic esophagitis (and my biopsy shows evidence of reflux), and i've had all sorted of rhino-sinus issues over the years and CT Scans show significant mucosal thickening. My biggest complaint is that my whole face (tracing my sinus passages) feels sore, puffy, and inflamed - including & especially around my eyes. The best I've felt in the last 10 years was after a 10d course of prednisone. All allergy tests have been negative and anti-histamines have never seemed to help, although i do keep optimistically reveerting back. Beyond this, my jaw (TMJ) often hurts, my lymphnodes feel quite tender, and my face is puffy.
It seems increasingly likely this is an inflammation issue and likely all related. Working with an Immunologist and trying to start Dupixent but it's proving to be a challenge in my country (Australia).
Beyond Dupixent, I'm really struggling to figure out what to do and how to manage symptoms.
Do you have any suggestions on what to pursue next? i am geting desperate :(
PS: congrats on the launch of Allermi! I am using Ryaltris right now and not very sure if it's helping.
b0tch72 karma
Hey Doc,
I am in the midst of a long and frustrating battle to understand what's going on inside my body. I've been diagnosed with eosinophilic esophagitis (and my biopsy shows evidence of reflux), and i've had all sorted of rhino-sinus issues over the years and CT Scans show significant mucosal thickening. My biggest complaint is that my whole face (tracing my sinus passages) feels sore, puffy, and inflamed - including & especially around my eyes. The best I've felt in the last 10 years was after a 10d course of prednisone. All allergy tests have been negative and anti-histamines have never seemed to help, although i do keep optimistically reveerting back. Beyond this, my jaw (TMJ) often hurts, my lymphnodes feel quite tender, and my face is puffy.
It seems increasingly likely this is an inflammation issue and likely all related. Working with an Immunologist and trying to start Dupixent but it's proving to be a challenge in my country (Australia).
Beyond Dupixent, I'm really struggling to figure out what to do and how to manage symptoms.
Do you have any suggestions on what to pursue next? i am geting desperate :(
PS: congrats on the launch of Allermi! I am using Ryaltris right now and not very sure if it's helping.
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